Transplant Tales: to China and back

Monday, April 17, 2006

Well, we were expecting criticism after reading this article. Regardless of the reason behind a prisoners sentence. You an I have no right an are in no position to know an or judge China's judicial system. Tiananmen Square is a nasty scar China will have to live with for a long time to come. However, the true reason for telling our story, is to begin a movement in modifying our current donor set up and UNO's transplant waiting lists. The waiting lists here in the states are not designed for an individual with cancer.
Besides, after researching info on China, while being in China. I am told, the number one crime punishable by death and the most common crime committed is, Drug Smuggling. Which occurs mainly along the border in the south along Vietnam, Laos, and Burma.
Remember you should only believe half of what you read in the media. Yes, they harvest organs from executed prisoners. No, they don't just go out and shoot a prisoner because a Westerner, a Brit, an Israeli, a Malaysian, or anyone else for that fact, shows up with the need for a liver, kidney, lung or heart. The prisoners do in fact have to give their consent to donate. So stealing is a poor choice of words.
The media has chosen to spin off the executed prisoner bit from our story. Please don't allow it to redirected you away from our main goal in sharing it.

8 Comments:

Anonymous Anonymous said...

Good luck to you my friend. I'm a 52 year old living donor xplant via UCSF in 2005. Doing very well after 14 months. UCSF xplant team incredible. Liten to them. LIFE is good.

4/17/2006 8:25 PM  
Anonymous Teresa Chen said...

I do believe that life is precious, everyone's life is in fact.

However, there has been much news reported lately of harvesting organs from dissidents and without their consent. For the past 6 years, the number of organ transplants have increased dramatically in China, coinciding with the persecution of Falun Gong, yet the number of executions are not proportionate to the statistics of transplant operations. It is believed that this group being persecuted are the source of these live organ transplants.

The CCP disregards human life and has a history of slaughtering the Chinese people and lies to coverup the truth. To encourage others to go to China for an operation, would be providing funds for the CCP to continue this persecution. The CCP would never voluntarily admit the truth.

4/17/2006 11:03 PM  
Anonymous John Wei said...

Teresa claim regarding harvesting organs from dissidents has no proof. We cannot just make our judgement base on what other people said. We need facts. Good luck to you and wish you fully recover.

4/18/2006 1:41 AM  
Anonymous Anonymous said...

Good luck to you and wish you fully cover. One of my friend gave 60% percent of his liver to his ill brother. The operation happened at Stanford Hosipital, CA. He used to say that this is his second chance to do goods to others.

4/18/2006 7:34 AM  
Blogger vida said...

Good luck to you. My huband(age 52) has HCC. At time of diagnosis in April 2005, the tumors exceeded Milan transplant criteria; so far, no transplant evaluation (7 tumors). According to CTscans, disease hasn't progressed since he started Tarceva 150 mg. daily in October. It's not a traditional chemo; it's a molecular targeted drug that inhibits epithelial tumor growth receptors. UCSF has A Tarceva plus anti-inflammatory trial for post surgery HCC (contact Dr. Alan Venook). My husband wasn't eligible for the trial but Tarceva can also be prescribed off-label by an MD. It was approved for lung cancer but not yet for HCC. Sorafenib is another new drug that's worth checking out (approved for kidney cancer not yet for HCC). Talk with your MDs about these drugs - I truly think they're worth a try and side effects (in my husband's case, are minimal). Genentech provided Tarceva for free until insurance approved on appeal. My husband won't be going to China but it would be helpful if you could post info about your tumor sizes and AFP level prior to transplant. Also, what chemo did you try last year? Thanks.

4/18/2006 11:32 AM  
Anonymous Sharif Roach said...

Eric,

I'm glad your life has been extended. I hope you cherish every moment of it from now on.

However, several of your claims seem either misguided or distortions of the truth. Since July 20, 1999, the Chinese Communist Party has relentlessly carried out a nationwide persecution of practitioners of Falun Gong, a peaceful spiritual discipline which cultivates truthfulness, compassion and forbearance. When the persecution began, Falun Gong had over 100 million practitioners in mainland China alone. Since the persecution began, thousands of kind and peaceful people--ranging from infants to the elderly--have been subjected to wrongful detention in police stations, labor camps, death camps, and mental hospitals where unspeakable and horrific acts of brutality, torture, rape, abortion, and murder have been routinely committed against them. (For several true accounts of the persecution, please visit http://www.clearwisdom.net.)

Because in the eyes of the CCP, Falun Gong practitioners have no rights--legal, human or otherwise--the murder of any Falun Gong practitioner may be officially reported as a suicide or treated with callous indifference. With millions of declared Falun Gong practitioners in mainland China who refuse to succumb to the persecution despite the risk to their lives, the CCP has had a plentiful supply of organs and body parts to meet the demand of thousands of desperate people awaiting organ transplantation from around the world. During this persecution statistics from organ transplant institutions in mainland China have shown an alarming increase in the number of organ transplants in mainland China. Is this merely a coincidence? What led to this increase in the supply of organs? Since the CCP has a long, well-documented history of widespread slaughter, brutality, and distorting the truth, claims by representatives of the government and organ transplant centers in mainland China to have obtained these organs lawfully and with the full consent of the donors are anywhere from highly questionable to false. (For further information on the history of the CCP, please refer to the Nine Commentaries at http://ninecommentaries.com/ or http://www.fgmtv.net/index.html). In light of the overwhelming evidence, for any rational, knowledgeable person to knowingly encourage others to go to China for an organ transplant would be to approve of and support this persecution. At the least, such a person would be answerable to not only to his own conscience.

Best Wishes,
Sharif Roach

4/18/2006 3:10 PM  
Anonymous libby said...

Good luck! Eric

Hope every thing goes smoothly.

I see no hard evidence supporting Sharif Roach's claim. all the info he/she provided is from Falun Gong's own sources. Most likely is their propaganda.

Falun gong's claims of over 100 million followers, as I know is definitely a lie. 100m is almost 9 percent of China's total population. I was originally from China. None of over hundreds of my family members or friends practice falun gong. this makes one hard to believe their claims.

even though the organ may come from a prisoner, I think it is OK to go and do such a transplant as long as proper regulations are enforced.

If we can save a life through a transplant , why not? To judge whether the organ is obtained legally is the business of the regulation body, not the patients.

4/19/2006 7:59 PM  
Blogger My Opinion Counts Too! said...

Mr. De Leon,
I read with much anger and complete confusion Debra J. Saunders opinion / article this past week in the "Wrongicle". I was completely shocked at how callous someone (especially someone who wasn't diagnosed with a life threating disease) could be.
While I had the luxury of knowing more about your situation than the average reader, I was shocked to find I apparently knew much more than someone who supposedly interviewed you.
Ms. Saunders is a complete hack, but that particular article wound up showcasing her complete ignorance. Maybe if the tables were turned and she was the one without "hope", she might consider alternatives like you did. I doubt anyone who faced your situation would just say, "Oh...I should find a treatment that pleases everyone, especially small minded Republican Stallwarts like Ms. Saunders."
I found it incredulous that she never happened to mention one of the main reasons that people have to go outside this country to find services and treatments like you did. Because we would rather bitch about our health care system and allow our "elected" politicians to finger point, rather than bite the bullet and overhaul a completely failed system.

I applaud your courage and convictions and am so happy that you will be able to be a participant in your children's lives.
Ms. Saunders has a cushy job with probably fantastic benefits and a well paid salary. How dare she comment on the affluency of others and their morals. She shoulld take some of her earnings and buy a mirror, but I suspect she wouldn't like what she saw.
I hope this blog does not offend you, Sir. I have only the highest regard for someone who puts their family above all else. While I do not know you, I can only say your are a remarkabely courageous person for taking such a chance.
May all of the luck in the world flow your way!

Sincerely,
Todd Smitherum
(BTW: My Wife is Stefanie from WFB)

4/27/2006 4:57 PM  

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